Certificate of compliance

Kleefstra syndrome

is in compliance with the HONcode

Logo certificat HONCode
2 Years

Certificate validity 30 May 2012 - May 2014

www.kleefstrasyndrome.org Visit website

Logo certificat HONCode
HONcode identification number:

HONConduct754544

Date of initial review:

01 Jul 2009

Certificate validity

30 May 2012 - May 2014

Date of last visit:

25 Feb 2014
See the HONcode seal on the site

Content identified by the HONcode team

The content below is a sample of the content identified at a specific date by the HONcode team that justifies the respect of the eight ethical principles.

Chris & Fiona Heslehurst are not medical professionals.

the website was created and is maintained by our members Chris & Fiona Heslehurst, who are the proud parents of Leah and Lucas. Leah was born in 2006 and diagnosed with Kleefstra syndrome at 1 year of age.
 

(23 May 2012) - Link

Collaborative platforms:

You should assume any information you read on the forum is not medical advice unless it specifically states otherwise, and the author provides details of his/her accreditations.
This forum is administered by Chris Heslehurst.
All members/moderators/administrators must respect others while posting on this forum and must be honest and true in anything they post.
Moderators/Administrators of this forum reserve the right to remove and/or modify posts of others should they be deemed unacceptable or unsuitable for the forum. We will PM or email you advising the post has been modified, a...

(30 May 2012) - Link

Any information provided on this website or our associated forum is designed to complement, not replace, the relationship between a patient and his/her own physician.
 

(23 May 2012) - Link

Collaborative platforms:

The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her existing physician.

(30 May 2012) - Link

Privacy Policy
Last Updated on Saturday, 21 April 2012 12:10
 

(23 May 2012) - Link

Collaborative platforms:

Any post you make on the forum is only visible to all other members of Kleefstrasyndrome.org and is not visible to any other party.
All members are able to modify or delete their own posts should they wish.

(30 May 2012) - Link

Link to Unique provided: www.rarechromo.org/

The data displayed correspond to only one of the selected samples.

Information reproduced with permission, from Unique's Kleefstra syndrome leaflet.
 

(23 May 2012) - Link

Collaborative platforms:

Where appropriate you must provide clear references to source data and, where possible, have specific HTML links to that data.

(30 May 2012) - Link

Last Updated on Tuesday, 01 May 2012 12:49
 

(23 May 2012) - Link

Collaborative platforms:
All posts and comments are automatically dated.
Thu May 03, 2012 8:49 am

(30 May 2012) - Link

This principle is not applicable to this site 

Collaborative platforms:

Any claims relating to the benefits/performance of a specific treatment, commercial product or service will be supported by appropriate, balanced evidence in the manner outlined above in.

(30 May 2012) - Link

E-form provided.

Contact Us
 

(23 May 2012) - Link

Collaborative platforms:

This forum is administered by Chris Heslehurst who can be contacted directly by email or by using the contact us form on the website.

(30 May 2012) - Link

We do not receive any funding from any source what so ever and the website was created and is maintained by our members Chris & Fiona Heslehurst, who are the proud parents of Leah and Lucas.
 

(23 May 2012) - Link

Collaborative platforms:

The forum administrator and moderators are in their roles voluntarily and do not receive any payment whatsoever for their work.

(30 May 2012) - Link

We do not display any advertisements whatsoever and do not receive any income from any information or links we display. Any third party links are provided as we believe they are related to our Website topic and are provided solely for the benefit of our members and visitors. We are not responsible for any content held on any third party Website linked to or from our Website, nor do we endorse any of their content.
 

Collaborative platforms:

The website administrator's do not display any advertisements whatsoever and do not receive any income from any information or links we display.
While we permit you to provide links to products/services they must only be used where appropriate and have no benefit to the poster monetary or otherwise.

(30 May 2012) - Link

The content of this certificate has been collected by the HON Foundation and may not be used without HON's express consent.

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The HONcode's significance

The Health On the Net (HON) certificate guarantees that this website complies with the eight principles of the HON Foundation's Code of Conduct at the date indicated above. The persons responsible for the site commit to maintaining its compliance with the HONcode principles for the duration of the site’s certification.

However, despite the complaint system that has been put in place and the periodic review and automatic monitoring of certified sites to ensure maximum compliance with the HONcode ethical principles, it is impossible to eliminate all risks of incoherence that may appear.

Under no circumstances shall the HON Foundation and/or its partner(s) be held liable for any damages resulting from the use or the inability to use HONcode-certified websites. Similarly, the HON Foundation and/or its partner(s) shall not be held liable for the content of such certified websites or any other website accessible via a hypertext link or through third-party information.

Those responsible for the certified website are responsible for the content of the website unless otherwise provided by law.

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