Certificate of compliance

Kleefstra syndrome

is in compliance with the HONcode

Logo certificat HONCode
7 Years

Certificate validity: 08 Mar 2017 - Mar 2018

www.kleefstrasyndrome.org Visit website

Logo certificat HONCode
HONcode identification number:


Date of initial review:

01 Jul 2009

Certificate validity:

08 Mar 2017 - Mar 2018

Date of last visit:

06 Feb 2018
See the HONcode seal on the site

Content identified by the HONcode team

The content below is a sample of the content identified at a specific date by the HONcode team that justifies the respect of the eight ethical principles.


(21 Feb 2017) - Link

Collaborative platforms:

To date all are parents of children diagnosed with Kleefstra syndrome and at least one administrator or moderator will frequent the forums usually on a daily basis.

(21 Feb 2017) - Link

No advice
2.1 Our website contains general medical information.
2.2 The medical information is not advice and should not be treated as such.

(21 Feb 2017) - Link

Privacy Policy

(08 Mar 2017) - Link

Collaborative platforms:

Moderators/Administrators of this forum reserve the right to remove and/or modify posts of others should they be deemed unacceptable or unsuitable for the forum. We will PM or email you advising the post has been modified, and the post itself will display a message stating it has been edited.
11. If necessary, warnings will be given to those who post unsuitable posts and repeat offenders may be banned from the forum. You will be notified by PM and email should this be the case.
12. Any post you make on the forum is only visible to all other members of Kleefstrasyndrome.org and is not visible to any other party.

(21 Feb 2017) - Link

The data displayed correspond to only one of the selected samples.

The above information has been derived from the leaflet published by Unique 2010.

(08 Mar 2017) - Link

Collaborative platforms:

Where appropriate you must provide clear references to source data and, where possible, have specific HTML links to that data. The date when a clinical page was last modified will be clearly displayed (e.g. at the bottom of the page).
5. Any claims relating to the benefits/performance of a specific treatment, commercial product or service will be supported by appropriate, balanced evidence in the manner outlined above in.

(21 Feb 2017) - Link

Kleefstrasyndrome.org 2017
Latest Update 05/3/2017

(08 Mar 2017) - Link

Collaborative platforms:

Joined: Thu Apr 30, 2009 9:34 pm
Posts: 5

(21 Feb 2017) - Link

This principle is not applicable to this site 

Contact Us

(21 Feb 2017) - Link

We rely entirely on donations and grants to fund our work. On 20th February 2017 we adopted small charity status (charitable unincorporated association) to better enable us to support the KS community and meet our aims.

(08 Mar 2017) - Link

The content of this certificate has been collected by the HON Foundation and may not be used without HON's express consent.

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The HONcode's significance

The Health On the Net (HON) certificate guarantees that this website complies with the eight principles of the HON Foundation's Code of Conduct at the date indicated above. The persons responsible for the site commit to maintaining its compliance with the HONcode principles for the duration of the site's certification.

However, despite the complaint system that has been put in place and the periodic review and automatic monitoring of certified sites to ensure maximum compliance with the HONcode ethical principles, it is impossible to eliminate all risks of incoherence that may appear.

Under no circumstances shall the HON Foundation and/or its partner(s) be held liable for any damages resulting from the use or the inability to use HONcode-certified websites. Similarly, the HON Foundation and/or its partner(s) shall not be held liable for the content of such certified websites or any other website accessible via a hypertext link or through third-party information.

Those responsible for the certified website are responsible for the content of the website unless otherwise provided by law.

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