Certificate of compliance

Diagnose und Behandlung der Muskeldystrophie Duchenne

is in compliance with the HONcode

Logo certificat HONCode
1 Year

Certificate validity: valid until May 2019

www.dmd-guide.org Visit website

Logo certificat HONCode
HONcode identification number:


Date of initial review:

22 Sep 2016

Certificate validity:

valid until May 2019

Date of last visit:

08 Oct 2019

Content identified by the HONcode team

The content below is a sample of the content identified at a specific date by the HONcode team that justifies the respect of the eight ethical principles.

Responsible authority
Prof. Dr. Janbernd Kirschner
Center for Pediatrics
Department Neuropediatrics and Muscle Disorders

(18 May 2018) - Link

The information and advice published or made available on this website is not intended to replace the services of a doctor, nor does it constitute a doctor-patient relationship. This advice should be taken in conjunction with medical advice from your doctor, whom you should consult in all matters relating to your health, in particular with respect to symptoms that may require diagnosis or medical attention. Any action on your part in response to the information provided on this website is at your own discretion.

(18 May 2018) - Link

Data Protection Declaration
Protecting your personal data is very important to us.
We place great importance on respecting the personal rights of all visitors to our website. Please find below our data protection declaration, informing you of the nature and extent of the personal data collected via this website, as well as the purposes for which this data is processed and used.
Webserver - Protocols
When you visit our website, as is usual on almost all websites, our server automatically collects information such as your IP address (including the domain name associated with the IP address, i.e. using reverse look-up), the date and time of your visit to our website, the pages you visited on our website and the browser you are using etc. It also stores, where this is available, the country from which you are accessing our website, the website from which you are accessing our website, the search word used (if our site is accessed via a search engine), as well as the type of connection and operating system. We use this information to constantly improve your website experience.
Personal data you provide
In general, you do not need to provide personalised information to access our website. Your personal data, for example your name, email address, etc. are stored only if you provide us with this information in order to contact us. This data is then processed and used to perform the requested services. In addition, this data is only processed and used for other purposes if you have given us your advance consent to do so. Your consent is also required to transmit your personal data to third parties outside the legally permitted circumstances.
Right of access to personal data and withdrawing consent
You have the right to receive a copy of your stored personal data at any time. In addition, you are entitled to withdraw your consent with future effect at any time. Please use the address provided under Contacts to do so.
Our website does not use cookies.
Google Analytics
Our website does not use Google Analytics.
We have implemented technical and organisational security measures to guarantee the security of your personal information. Users’ personal information is stored in our secure networks and access is restricted to those employees and partners who are entitled to access our systems.
Data processing in countries outside the European Economic Area
No personal data collected via this website is processed outside the European Economic Area.
Contact us at the following address if you
wish to correct, delete or block your personal data
wish to obtain information about the personal data we have stored about you
wish to withdraw your consent, or
have other questions relating to data protection

(18 May 2018) - Link

The data displayed correspond to only one of the selected samples.

This web site is based solely on the brochure The Diagnosis and Management of Duchenne Muscular Dystrophy - A guide for families written and produced by MDA, PPMD, TREAT-NMD and UPPMD.
References for the main document:
Bushby K, et al. The Diagnosis and Management of Duchenne Muscular Dystrophy, part 1: diagnosis, and pharmacological and psychosocial management, Lancet Neurology 2010, 9(1) 77-93. [link]
Bushby K, et al. The Diagnosis and Management of Duchenne Muscular Dystrophy, part 2: implementation of multidisciplinary care, Lancet Neurology 2010, 9(2) 177-189. [link]
Printable versions of this guide in different languages may be downloaded from www.treat-nmd.eu.
The layout of the website and all materials on the website (including, but not limited to, text, images, photographs, graphics, drawings, models, animated sequences with sound or not) are the exclusive property of MDA, PPMD, TREAT-NMD and UPPMD. Any use, copying, reproduction, modification, publication, downloading, distribution or transmission of the website and/or of one of the above mentioned materials, in any form or by any means, is strictly prohibited without prior written authorization.
Fotos: Marta Nardini/Moment/Getty Images

(18 May 2018) - Link

Last updated on January 31, 2017.

(18 May 2018) - Link

Phone +49 761 270 44970
Fax +49 761 270 44460
Email: info(at)dmd-guide.org

(18 May 2018) - Link

This web site was sponsored by PTC Therapeutics. PTC had no influence on the content of this web site, which is based exclusively on a pre-existing patient guidance brochure with contributions from the therein credited organisations and institutions.

(18 May 2018) - Link

Our website does not host any form of advertisement.

The content of this certificate has been collected by the HON Foundation and may not be used without HON's express consent.

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The HONcode's significance

The Health On the Net (HON) certificate guarantees that this website complies with the eight principles of the HON Foundation's Code of Conduct at the date indicated above. The persons responsible for the site commit to maintaining its compliance with the HONcode principles for the duration of the site's certification.

However, despite the complaint system that has been put in place and the periodic review and automatic monitoring of certified sites to ensure maximum compliance with the HONcode ethical principles, it is impossible to eliminate all risks of incoherence that may appear.

Under no circumstances shall the HON Foundation and/or its partner(s) be held liable for any damages resulting from the use or the inability to use HONcode-certified websites. Similarly, the HON Foundation and/or its partner(s) shall not be held liable for the content of such certified websites or any other website accessible via a hypertext link or through third-party information.

Those responsible for the certified website are responsible for the content of the website unless otherwise provided by law.

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