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HONcode status
Certificate of compliance with the Code of Conduct HONcode

HONcode status The health Website
The Association for Glycogen Storage Disease
is in compliance with the HONcode

Title of the site:The Association for Glycogen Storage Disease
Web address:http://www.agsdus.org/
HONcode PIN number :HONConduct792148
Date of initial review: 29 Apr 2004
Validity of certificate13 Nov 2011 - Nov 2013
Date of last visit14 Jan 2013
   Show the HONcode seal on this site

This certificate confirms the revision of the site by the HONcode Team at the above date.
It respects and pledges to honor the 8 principles of the HON Code of Conduct (HONcode).

* 1. Authoritative   2. Complementarity   3. Privacy   4. Attribution   5. Justifiability   6. Transparency
    7. Financial disclosure   8. Advertising policy

HONcode status
HONcode status

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The Health on the Net (HON) certificate serves as a guarantee that this website, at the date of its certification, complies with and pledges to honor the 8 principles of the HON Code of Conduct as drawn up by the HON foundation.

The responsible of the certified site commits to keep the site in compliance with the HON code principles for the duration of the certification.

Although measures such as a complaint mechanism, the periodical review and the automatic surveillance mechanisms are put in place to guarantee the compliance of the certified website with the ethical principles of HON as much as possible, incidental inaccuracies cannot be completely excluded. In no event the HON foundation and/or its partner(s) can be held liable for any damages resulting from the use or inability to use HON certified websites nor can the HON foundation and/or its partner(s) be held liable for the content of these certified websites, including, but not limited to the information of third-parties or hyperlinks accessible via HON certified websites.

The certified website is responsible for the content of its website, unless otherwise provided by law.


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You will find below the elements identified by the HONcode team at a precise date to justify the respect of the 8 ethical principles.

The content of this certificate has been collected and written by the Health On the Net Foundation (HON) and should not be used without previous permission granted by HON. A request for permission can be sent to: HON.

1. Information must be authoritative
The current members of the Scientific Advisory Board are:
J.E. Abdenur, MD
Chief, Division of Metabolic Disorders
Pediatric Subspecialty Faculty - Children's Hospital of Orange County
Medical Director, Metabolic Laboratory
Children's Hospital of Orange County
Orange, CA
jabdenur choc.org
  (25 Oct 2011) - Link

2. Presentation of the site
This website provides basic information about the glycogen storage diseases.
  (25 Oct 2011) - Link

The information is intended to be of use to people affected by one of the glycogen storage diseases, their families, and other interested parties.
  (25 Oct 2011) - Link

Purpose of the website
The materials and other information provided on this website are for educational purposes only; and are designed to support, not replace, the relationship that exists between a patient/site visitor and their physician. Please consult your doctor for specific medical advice, diagnoses, and treatment.
  (25 Oct 2011) - Link

3. Confidentiality
Privacy Statement
  (10 Nov 2011) - Link

4. Information must be documented: Referenced and dated
Only data for one sample are displayed among those selected.
see HC1
  - Link

Website last updated on September 24, 2011
  (25 Oct 2011) - Link

5. Justification of claims
This principle is not applicable for this site 

6. User support and adequation
Contact Us
  (25 Oct 2011) - Link

7. Disclosure of funding sources
The site is funded solely by the Association for Glycogen Storage Disease; no outside contributions were used to fund this site.
  (25 Oct 2011) - Link

8. Advertising policy
This website does not use any advertisements whatsoever.
  (25 Oct 2011) - Link

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