Certificate of compliance

Information Centre for Rare Diseases and Orphan Drugs

is in compliance with the HONcode

Logo certificat HONCode
9 Years

Certificate validity: 10 Jan 2016 - Jan 2017

www.raredis.org Visit website

Logo certificat HONCode
HONcode identification number:

HONConduct846178

Date of initial review:

06 Jun 2006

Certificate validity:

10 Jan 2016 - Jan 2017

Date of last visit:

10 Jan 2016
See the HONcode seal on the site

Content identified by the HONcode team

The content below is a sample of the content identified at a specific date by the HONcode team that justifies the respect of the eight ethical principles.

Staff
Information Centre for Rare Diseases and Orphan Drugs (ICRDOD)
Prof. Rumen Stefanov, MD, PhD - director
Dr. Tsonka Miteva, DMD - epidemiological registries for rare diseases
Georgi Iskrov, MBA – health technology assessment and analysis
Galita Decheva - relations with medical professionals and patients
 

(04 Dec 2015) - Link

The information provided on this site is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her doctor.
 

(04 Dec 2015) - Link

Privacy Policy
The Institute for Rare Diseases is committed to honoring and respecting the privacy and anonymity of the individuals using its website and services. The Institute collects personal information only when it is voluntarily provided for a particular service. The information collected concerns only communication details.
The Institute adheres to the Bulgarian and European Union laws on protection of personal data. Any personal information voluntarily provided by users and visitors of the Institute’s website is kept in the strictest confidence. No information is shared with any third party.
The Institute collects impersonal data for technical and statistical purposes. Impersonal information is always collected when someone visits the Institute’s website to improve the Institute’s website and services.
The Institute’s website uses Google Analytics to help analyze how users use the site. No personal information is collected from Google Analytics. For further information on the privacy policy concerning Google Analytics, please go here.
The Institute does not use cookies.
 

(10 Jan 2016) - Link

The data displayed correspond to only one of the selected samples.

REFERENCES
1. Guistna A, Barkan A, Casanueva F et al. Cruteria for cure of Acromegaly. A consensos statement. J Clin Endocrinol. Metab. 2000; 85: 526-529
2. Melmed S, Jackson I, Kleinberg D, Klibanski A, Current treatment guidelines for acromegaly. J Clin Endocrinol. Metab.1998; 83: 2646-52
3. Melmed S. Medical progress; acromegaly. 2006; 355: 2558-73
4. About Sandostatine Web site. Novartis core labelling, text March 16, 2009
5. Sonino N, Giovanni A. Fava. Rehabilitation in Endocrine Patients: A Novel Psychosomatic Approach.
Psychother Psychosom 2007;76:319-324
 

(04 Dec 2015) - Link

Last modification: 13:49 16.01.2011
 

(04 Dec 2015) - Link

This principle is not applicable to this site 

Contact us
 

(04 Dec 2015) - Link

ICRDOD is a project and activity of the Bulgarian Association for Promotion of Education and Science (BAPES) - a non-government non-profit organization, registered under the Bulgarian law on legal persons with non-profit purposes in 2003. For the realization of this website, BAPES utilizes its own funding, received from private donors.
 

(04 Dec 2015) - Link

There is currently no advertising or sponsored content on the ICRDOD website.
 

(04 Dec 2015) - Link

The content of this certificate has been collected by the HON Foundation and may not be used without HON's express consent.

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The HONcode's significance

The Health On the Net (HON) certificate guarantees that this website complies with the eight principles of the HON Foundation's Code of Conduct at the date indicated above. The persons responsible for the site commit to maintaining its compliance with the HONcode principles for the duration of the site’s certification.

However, despite the complaint system that has been put in place and the periodic review and automatic monitoring of certified sites to ensure maximum compliance with the HONcode ethical principles, it is impossible to eliminate all risks of incoherence that may appear.

Under no circumstances shall the HON Foundation and/or its partner(s) be held liable for any damages resulting from the use or the inability to use HONcode-certified websites. Similarly, the HON Foundation and/or its partner(s) shall not be held liable for the content of such certified websites or any other website accessible via a hypertext link or through third-party information.

Those responsible for the certified website are responsible for the content of the website unless otherwise provided by law.

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